Here to receive the Proclamation is Matt and Karli Hughes, and Em (who has Rett Syndrome), Sister- Madison and brother Reid.
Rett Syndrome is a genetic neurological disorder that occurs almost exclusively in females. Every two hours a girl is born with Rett Syndrome, its symptoms usually do not appear until the child is 6 to 18 months of age. A regression period leads to lifelong impairment with multiple dysfunctions: speech is lost, seizures can develop and scoliosis occurs, many develop irregular breathing patterns, and more than half of the girls and women lose their ability to walk. Those diagnosed with Rett Syndrome require maximum assistance with daily living activities. The disorder is not degenerative and biomedical research is proving that neurological symptoms could be reversed even after decades of severe symptoms. We must continue our efforts in bringing awareness to the medical community, as well as therapists, teachers, caregivers, and general public and support researchers who are dedicated in finding a cure for Rett Syndrome.